Day 43 | OCTOBER 23, 2021
Good evening Friends, today is day 43 of our new and amazing life.
As part of my new schedule, I now arrive at the hospital around 3pm, so I can be sure Charlie is all done with her daily routine with her CEA skin.
Charlie was awake and happy to see me today, she was excited to see pictures of our boys in their Halloween costumes, she knew her friends would be doing a Halloween Bash event for the kids, and also a fundraiser to collect funds for me to donate to the Gordonsville Fire Department and the 15 first responders that rescue Charlie. If you would like to donate for the first responders, you can let me know.
Today Charlie seemed to be in much more pain, so much that she was shivering, it truly makes me so sad that she is suffering and in pain , but even though she was in so much pain, she wanted to talk and we talked a little about the boys costumes for Halloween, we also talked about the book she is listening to, where the crawdads sing, she is really liking it
After few minutes of chatting she asked to watch a little bit of a show on her tablet, at that point I was very hot, I have to wear a full body suit, with mask, shoe cover and head cover and the temperature on her room was 81 degrees, they keep it extra warm during her air drying time, and slowly bring it down on the hours after.
Charlie asked me today for the first time to go home earlier , so I could spend more time with the boys. It was really hard to see her asking me this, because my initial thought was, have I done anything wrong? So you want me to leave?
I also experienced some guilt, am I not spending enough time with our boys?
But shortly after I recognized that Charlie’s heart just wants the best for our kids and she wants me to be there with them, I also think that maybe she was in so much pain that she didn’t want me to see her suffering? Regardless of her reason, they are all a reflection of Charlie’s selfless character.
I was able to explain to Charlie that being there with her is very important to me, to be in her presence brings me comfort, because I do miss her a lot! Only God knows how much I miss her.
I decided to continue our visit as normal, because I do need my time with Charlie, and I also had already spent the morning with the boys, it is an imperfect balance, and it is really hard for me, because no matter the way I turn, I am going to let one or the other down, But I do trust God and inside of me, I think Charlie needs me more right now, since our boys are with me everyday, and they also have my mom, sister and brother-in-law, plus all of our friends, Charlie can only see me .
I would like to ask for your help, in particular all the new people, welcome to our group, if you haven’t done so yet, please help us to get to the 200k goal for Charlie’s medical bills fund!
We have passed the halfway mark, but we still have a long way to go and if you already donate, thank you and please continue to share and together you can help us achieve the goal.
Please visit https://www.gofundme.com/.../financial-support-for...
I am so very grateful for your prayers and generosity!
Today was a good day!
May God Bless You!!