Day 355 | AUGUST 31, 2022

Good evening, Friends. Today is day 355 of our new and fantastic life!

We now have an established morning routine; after breakfast, Charlie takes London to school; they find a way for London to ride on the chair with Charlie, and they go at the supersonic speed of 7.6mph.

It is fantastic to see Charlie and London zipping downhill from our house towards the school.

Charlie had a busy day; she left at 10:30a and didn’t return until 3:30 pm she had OT and PT appointments; today, she broke a new record at PT; she “walked” 940 feet, including carpet transition.

At OT, she tried her pressure garments, she received her upper body garments, her gloves will have to be redone, they didn’t fit quite right, that is normal for pressure garments, they have to work perfectly, she said that it is very uncomfortable and painful to wear it, so she is starting to wear than for 1 hour a day, and slowly increase how long she wears until she can withstand 23 hours a day! It is not going to be easy, but Charlie is determined.

She was exhausted when she got home, but she felt very accomplished.

I had a busy day as well, I received the final edited manuscript of my book, and now it is in the typesetting phase; we are on track to publish as expected on 9/10. In the next few days, I will announce the book pre-orders and how to redeem your pre-order; it is so exciting and scary to send the book to the printer.

I never imagined a book coming out of my journals; it is very humbling.

I am so grateful for your support, and because of you, we have remained on the new release list on Amazon since the pre-sale started; that is unbelievable! Thank you!

We had a blessed day, and I am so grateful for today.

Have a good night, and May God Bless You!

André