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Day 353 | AUGUST 29, 2022

Good evening, Friends. Today is day 353 of our new and fantastic life!

Today was London’s first full day of kindergarten, and he was very excited:)

School days start early, 6:30 am, to get the boys ready, have breakfast, make sure his lunch box is prepared, and by 8:15 am, we are out the door.

Today Charlie had an exciting day; she first went to the Podiatrist; sadly, due to her burns, the shape of her nail beds has changed, causing them to become ingrown and causing much pain; she is hoping that she will experience some relief soon.

After that, she went to PT, where she worked hard; she needed to maintain her range of motion to avoid further loss of use in her hands and legs.

Once she returned home, and after lunch, her new power chair was delivered. She has been using a loaner chair, and now she has a custom-made chair to accommodate her legs adequately; wow, what a difference, the loaner chair was so big compared to the new one. Now we can see Charlie before we notice the chair. She is pleased with her new chair, and we are very grateful that insurance has covered the cost of her power chair.

She also received the good news that her burn compression garments have arrived at UVA! She is excited to have them and hopes they will help improve her scars. I know it won’t be easy since compression garments must be used for 20 to 23 hours daily, squeezing the skin. I am praying that Charlie can tolerate the pressure.

Charlie decided to test her new chair speed, and she raced London, her chair can go up to 7.4 miles per hour, and Charlie registered 7.2 miles going up the hill. She loves elevating her adrenaline!

Tomorrow we are taking our cat Bluey to the vet. It is possible that he could be experiencing a UTI; poor kitty, we will have him checked up.

I also want to share that I continue to do better each day. The gratitude journal is a blessing and is helping me each day.

We had a blessed and happy day!

I appreciate your support, and please continue to pray for us.

Today was a good day!


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Aug 30, 2022

You would never know Charlie experiences so much pain and discomfort from her always beautiful smile and sunny disposition. 💜🌸💜

Charlie and Julien .jpeg

Cheering on Charlie. 

On Friday, September 10th, Charlie Anne Xavier was in a horrific and life-changing accident. Though she’s surprising her doctors and nurses daily with her incredible strength and resilience, this road to recovery will be an incredibly long one. 

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