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Day 204 | APRIL 2, 2022

Good evening, Friends, today is day 204 of our new and amazing life!

I had an early start today; Julien continues to wake up very early 🙂

I had such a fun morning with the boys, we played soccer indoors, London now is into “fighting “, I guess soon I need to enroll him in Brazilian jiu jitsu, he is already asking for it.

After lunch I made my way to see Charlie, when I arrived, she was just finishing her wound care and I got to see how well her wounds are healing, she is really making good progress, but she also has new spots, but that is the price of PT and OT, the more she stretches and gains range of motion, the more rips and cuts she will experience in her CEA skin, it is to be expected.

Today Charlie had another sweet friend, and it was such positive and emotional visit, Charlie was able to express some grief about the loss of time with the boys and her physical limitations, It is not easy to walk in her shoes, and I am so proud of her for expressing her feelings and emotions, they are valid and it is important to name those feelings.

We had dinner together and it was great to see the love and support from Charlie’s friends towards her, so far, every visitor has been amazing! Loving, supportive and thoughtful towards Charlie, she loved every visit so far! Thank you 🙏.

We started to watch Brene Brown new documentary on HBO Max, it is about her book Atlas of the Heart, and it was a great episode and after it, Charlie and I had one of the most vulnerable and open conversations, it truly was a one of kind opportunity to share our feelings to each other and we felt so much love towards one another, it is amazing how painful experiences can bring to surface incredible love.

One of the emotions discussed on the show was Anguish, and God knows how much Anguish I felt, the moment I received the call about the accident, and once I arrived at the hospital and saw Charlie for the first time , and few other times during this journey, the kind of pay Anguish inflicts is only know to the ones that have experienced it, it is so deep that changes parts of you, I know how much I have changed so far on this journey, and I can say for certain that a lot of it has come from Anguish and it is a very high price your mind and soul pays when afflicted by Anguish.

Charlie was uncomfortable today. She worked very hard this week with PT and her body was tired, she is making great progress and she is happy to see the direction she is going.

She asked me for a favor, Charlie asked me to request from you a funny story, or passage about your family. She said she would love to laugh and she will be reading the comments tomorrow, so if I am asked, can you please share a funny story with Charlie tonight:)

Thank you and May God Bless You!


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Charlie and Julien .jpeg

Cheering on Charlie. 

On Friday, September 10th, Charlie Anne Xavier was in a horrific and life-changing accident. Though she’s surprising her doctors and nurses daily with her incredible strength and resilience, this road to recovery will be an incredibly long one. 

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